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How You Can Help Your Child

Read this page to Find out how you can help your child.

Get help from a doctor.
If you think your child has Waardenburg Syndrome, ask yourself these questions:

  • Does my child have different hair, skin, or eye color?
  • Does my child have hearing loss?
  • Does my child have other conditions, such as problems with her stomach or spine?
  • Does my child have cleft lip/palate?

If you answered "yes" to one or more of these questions, get your child tested for Waardenburg Syndrome. If there is a problem, you can get help.

Find out about treatments that work.
If you think your baby has Waardenburg Syndrome:

  • See an ENT (ear, nose, and throat) doctor right away
  • Ask for an exam
  • Ask about choices

Different treatments can help:

  • speech therapy
  • surgery
  • genetic counseling

Talk with your baby's doctor to decide which treatment is best for your child.

Get more information.

  • Get yourself tested to see if you carry the gene for Waardenburg Syndrome.
  • Bring your baby to a doctor and ask about choices.
  • Ask about the different tests for Waardenburg Syndrome.

Help your child feel good about herself.

  • Be there for your child and support her.
  • Let her know that it's okay that she looks different from other people.
  • Show her pictures of other family members who have WS.
  • Tell your child how beautiful she is. WS is part of that beauty.
  • Teach her about WS so she can understand the disorder.

Learn more about Waardenburg Syndrome.

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National Institute on Deafness and Other Communication Disorders

Children's Hospital of Philadelphia
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