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Raising Deaf Kids: a world of information about children with hearing loss

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About Us

Read this page to learn who we are and what we're trying to do.

Why we made this website
We want to help parents like you make better decisions.
We made this website so you can find lots of information and resources on hearing loss here. We hope you find it useful.
Please share your stories with us, too!

Who we are
Our group is called the Deafness and Family Communication Center (DFCC) at the Children's Hospital of Philadelphia. Here’s what the DFCC does: Parent looking at our website

  • Gives clinical services for deaf and hard-of-hearing children and teenagers.
  • Does research on how hearing loss affects children, teenagers and their families.

This website is made possible by a grant from the National Institute on Deafness and Other Communication Disorders (NIDCD).

Meet our team

picture of our group

In photo:(front row) Evelyn Prisament, Lisa Bain, Pamela Lin, Dahlia Rin, (back row) Dr. Annie Steinberg, Lisa Fusick, Nirav Shelat, Dr. Yuelin Li, Bruce Hansen.

Annie Steinberg, M.D.

Annie is the director of the DFCC.
She is a pediatrician and child and adolescent psychiatrist. She is fluent in sign language, and has worked with deaf people for 15 years.

Lisa Bain, M.A.

Lisa is currently a consultant for the website. She worked as the project manager on two other studies about families with children who are deaf or hard of hearing. She has written 3 books on how to raise children with health problems.

Yuelin Li, Ph.D.

Yuelin designed and made the decision aid.

His website is at http://idecide.mskcc.org.

Bruce Hansen

Bruce manages the day-to-day operations of the website. He has worked as a video editor, web designer and Peace Corps volunteer.

Lisa Fusick

Lisa writes content for the website. She is a researcher, teacher, and counselor.

Dahlia Rin

Dahlia edits and creates content for the website. She is also a student at the University of Pennsylvania. She is studying math and urban studies. She plans to go to law school in the near future.

Evelyn Prisament

Evelyn is responsible for content creation and translation on the Spanish version of the website. She is a graduate of Brown University and is currently studying at Pennsylvania University.

Pamela Lin

Pamela is a student at Dartmouth College. She researches topics and writes content for the website.

Nirav Shelat

Nirav is a student at the Wharton School of Business. He does research and editing for the Deafness and Family Communications Center.

Josh Skaroff

Josh designed and built the website. He has made websites for many different companies. He currently majors in Computer Science at the University of Pennsylvania.

Bridget Mancano, M.A.

Bridget checks our web pages about audiology to make sure they’re correct. She also writes some of the pages. She is an audiologist who works mainly with children. She has worked as a clinical audiologist, instructor and clinical supervisor since 1984.

Ginny Duncan, M.A.

Ginny checks our web pages about laws and programs to make sure they’re correct. She has been the coordinator of the Parent Education Network (PEN) for 14 years. She wrote a guide called, "...But What About My Deaf Child: A Guide to Special Education in PA for Parents of Children Who are Deaf or Hard of Hearing."

Janet Ohene-Frempong, M.A.

Janet helps make sure our web pages are easy to read.
She was the Director of the Health Literacy Project.
This group tried to get health information to people who have trouble reading.

Linda Rosa-Lugo, Ph.D.

Linda checks the translations of our pages from English to Spanish. She also makes sure our web pages will suit our Spanish-speaking audience. She is a professor of Aural Rehabilitation at the University of Central Florida.

Alan Stein, M.D., Ph.D.

Alan helps us with the technical part of the website. He teaches a class called “Health Care and the Internet” at the Annenberg School for Communications.

Tanya Brown, M.A.

Tanya helps check the information we write. She currently works as a mental health therapist at the Pennsylvania School for the Deaf.

Advisory Board

A group of about 30 parents and professionals helps us with the website. They give us their advice about different parts of the site. They also tell us what we should add to make it more helpful to other parents.

How to get in touch with us
3440 Market St., 4th floor
Behavioral Health Center
Philadelphia, PA 19104
Voice: (215) 590-7440
TTY: (215) 590-6817
Fax: (215) 590-1335
E-mail: info@raisingdeafkids.org

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